r/dpdr • • Feb 19 '26

Official Weekly Symptom, “Is This DPDR?”, & “Does Anyone Else?” Thread

13 Upvotes

If you’re experiencing unfamiliar or frightening symptoms and wondering “Is this DPDR?” or “Does anyone else feel this?”, this is the right place to ask.

We’ve moved symptom-check questions into this weekly thread because constant comparison and reassurance-seeking can unintentionally keep DPDR and anxiety stuck. This space lets you get support without turning the whole subreddit into symptom scanning.

A few things to keep in mind:

DPDR looks different for everyone

Similar symptoms can have many causes

Replies here are shared experiences, not medical diagnoses

If you’re new or feeling overwhelmed, we recommend starting with the Official DPDR Resource Guide, which explains DPDR, common symptoms, and recovery in one place:

👉 Official DPDR Resource Guide

https://www.reddit.com/r/dpdr/comments/zdzqob/rdpdrs_official_resource_guide/

Tips for using this thread:

Ask your question once and try not to re-check repeatedly

Share briefly rather than listing every symptom

Focus on grounding and next steps, not symptom counting

If you’re in crisis or feel unsafe, please use the crisis resources in the sidebar.

You’re not doing anything wrong by being scared or confused — this thread is here to hold those questions while keeping the rest of the sub recovery-focused.


r/dpdr • • Jul 03 '26

Official r/DPDR Discord

4 Upvotes

r/dpdr • • 11h ago

Question Feels like I’m watching a movie out of my eyes.

20 Upvotes

Am I alone on this particular symptom?

It’s genuinely like a video or some type of screen. Like a super HD 4K movie Everything just looks so fake!!!!


r/dpdr • • 1h ago

Question Anyone know if there’s any connection between MCAS and dpdr?

• Upvotes

I suspect I have MCAS even before the dpdr started. Be I’m wondering if some of my physical symptoms could be worsening due to this…I also had pmdd and hormonal issue prior to it. Im just thinking if dpdr and Mcas (if it is Mcas) could be causing it all to continue to flare up.


r/dpdr • • 4h ago

TW: Intense Panic/Crisis Im losing everything

3 Upvotes

Guys I’m so stuck and panicking now. This just gets worse and worse. Please anyone with severe loss of sensation I’m talking very severe. What helped you? I know everyone is saying to ignore it and try to live life but this is disabling for me. I don’t undertand why everyday it gets worse it never plateaus at any point. Why is my nervous system breaking down like this? It’s obviously terrifying and I don’t even know if this is dpdr at this point or something else. Im so scared.


r/dpdr • • 7h ago

TW: Intense Panic/Crisis My vision is failing me.

4 Upvotes

Yes, I see things 4k—I see everything. But I feel like my vision is blurry. It feels like I'm forgetting in real time. I don't feel right here. It looks like psychosis. I feel like I want to reset my mind with a hard blink. I can't seem to concentrate, I can't even remember what I just did, and I don't feel like myself at all. What the heck, this is really terrifying. It's like I'm blind—I can't seem to see the center, only the sides. as if someone were shining a bright white light directly into my eyes


r/dpdr • • 5h ago

Need Some Encouragement Does anyone relate to these symtoms?

3 Upvotes

- Tunnel vision pretty much 24/7

- The world feeling dreamlike

- Things feeling unfamiliar/strange foreign / uncanny (some examples are my own house, loved ones, possessions and movies/tv shows/video games)

- Feeling like I can’t absorb the information I’m seeing. Like I’m looking at something but not actually “seeing” it so to speak. Like I’m not absorbing what I’m looking at. (Cause I’m stuck in my head)

- No connection to loved ones

- No connection to past (past memories feel like they didn’t happen to me or I didn’t experience them even though I know I did logically) (feel separated from them)

- Pictures of me from the last don’t feel like me

- Emotional numbness / flatness / blunting

- Emotions sometimes feel blocked or trapped

- Having to “act” like myself and go through the motions

- Being on autopilot

- Time blindness. Days, weeks, and months will pass without me remembering them. Time moving too fast. Not able to feel if something is long or short. Example (A car ride, a movie etc)

- Physical numbness. Feels like there’s a barrier between what my skin is feeling. Ex. Touching hot or cold things. I know they are hot or cold but it’s like I’m not experiencing it. Same thing with physical pain or walking barefoot.

- Random memories sometimes pop into my head. Usually things I had completely forgotten about.

- Feeling like my past was completely wiped out from my brain.

- Not ever able to feel present.

- Not able to feel panic attacks anymore or adrenaline from jump scares

- Loss of spontaneity

- Loss of sense of humor

- No inner monologue (blank mind)

- Can’t feel the “atmosphere” or “vibe” days, holidays, the weather etc all feel the same. For example Monday, or the weekend used to have a certain feeling to them. Same with things like Christmas time, Summer etc.

- Loss of hunger and thirst cues and the feelings of when I’m naturally tired for sleep

- Everyday feels the same (groundhogs day)

- Feeling like nothings outside my room/house (in a void)

- Loss of nostalgia

- “Brain fog” trouble thinking or concentrating

- Sudden intense deja vu

- Visual snow (black and white flickering dots over everything, especially obvious when outside)

- My voice doesn’t sound/feel like mine (on and off)

- Sound volume doesn’t feel loud even at loudest setting

- Not attracted to people anymore


r/dpdr • • 9h ago

Need Some Encouragement Did anyone else feel like this?

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5 Upvotes

r/dpdr • • 7h ago

TW: Existential/Spiral Does anyone else feel like they have no reason to get better anymore?

3 Upvotes

I used to be really creative, positive and inspiring to myself and extremely confident. I learnt a lot over the years, changed habits and became extremely honest and self reliant and the pressure of my life and what others were doing spiralled me and I felt like when others would question my motives who were jealous of me eventually I couldn’t handle how the world was and tried to change myself so much again but then the DPDR started and I went through months of intense distress nightmares losing myself feeling like my emotions and everyone else’s were just a pointless perspective and there was no point of anything anymore but now I just miss when I’d go after what I wanted when I could feel things and how natural life was. I can’t picture a reason to get better for anything (I haven’t been close with my family for years since I started having realisations about my life) and they’re the only people I see occasionally so there’s no reason to get better for them, it would have to be for myself but I got to the point now where I feel so not like my old self that it’s hard to find a reason to get better and my brain feels so brain dead like it’s not possible. Does anyone have any thoughts or relate at all?


r/dpdr • • 10h ago

Question I’m scared of feeling better?

3 Upvotes

so basically this is a quick post. sometimes i get these breaks of my dpdr and i start to feel better and i acknowledge it but whenever i start to feel better i question my sanity or i get scared and ask myself what if your not better and ur just loosing who you are and ur fully going out of it. idk it seems stupid but anytime i feel slightly better i back myself into a corner because i can’t trust myself or my brain.


r/dpdr • • 4h ago

Success Story My DPDR Recovery Journey after 50days

1 Upvotes

50 days into recovery. Still healing, still fighting, and finally starting to feel like myself again.

It’s been 50 days since I had a terrifying panic attack after a bad experience with weed.

I’ve lived through days when my own mind made the world feel like a nightmare, when I questioned whether anything was real, whether people were truly there, and whether I was trapped inside some cruel simulation. I was terrified, lost in questions I couldn’t answer, desperately trying to find my way back to a world that once felt like home :)

And now I’ve been taking sertraline and olanzapine for 3 days.
Honestly, it feels almost like a miracle, although maybe I’ve also been helping myself, because I know medication can’t work that quickly. My intrusive thoughts have decreased, and the fear I had of the sky has gone away too. It doesn’t feel strange to me anymore.
Besides starting medication, I’ve genuinely been forcing myself to fight for my life. I remember crying and telling myself I had to keep going out and running, haha ;)) Eat well, spend time with your friends, AND GROUNDING MEDITATIONS and keep doing things even when they feel meaningless.
From day one, I forced myself to leave the house, even when it was difficult.
Don’t underestimate the power of giving your body a sense of safety.
I voluntarily admitted myself to a psychiatric ward for a few days, and I genuinely think it helped me feel safe. They gave me my medication regularly, I didn’t have to worry about cooking, and the place started to feel like home. I live abroad and haven’t seen my family in three years, so I think having that sense of safety helped me reconnect with reality.
It’s so important to be in a situation that makes you feel safe, something I’ve been deprived of since childhood, because I never really felt safe.

By the way, try not to keep checking your symptoms, and stay away from Googling them.

I also take NAC, omega-3, and zinc supplements. My iron levels were low too, so I’ve been taking iron tablets. Saffron tea also seemed to help my mood.
I used to run a lot, and I actually ran 70 km in September.
I don’t know if this recovery will last or if I’ll have setbacks, but I’m not afraid anymore. We only get one life, and I want to make the most of every moment of it.
I really hope you get better soon, my friend. Believe me, you can get through this. ❤️

Feel free to DM me anytime if u need any help or u need someone just to talk,

You can also find me on Instagram: @urfriendAmir :)


r/dpdr • • 5h ago

Need Some Encouragement From the second I open my eyes, until I close my eyes, I have random music in my head. It’s never my choice, it’s just there. I love music, but this never turns off

1 Upvotes

This is the one symptom that makes me feel like I’m losing it 24/7. from the second i wake up, until the second I go to sleep - I have random music lyrics repeating. every, single, day. Never stops. And a lot of times there’s other fragmented words on top of it. most of the time I have to sleep with headphones in playing something I actually want to listen to, to drown it out.

does anyone else have this? It’s been 5 years and has never gone away. I have no space or quiet in my brain. Prior to this, I used to be able to think about things I wanted to, and not think about things I didn’t want to. These was a voice in my head of my own thoughts. There was space between thoughts and quiet. Now it feels like a hamster wheeel non stop. I can’t even think clearly because the music goes on and on. Also if I hear or read a word, my mind finds a song with that word in it and starts playing that. Sometimes it jumps back and forth all day long like a radio.

i also wonder why I’m not afraid of elevators. Not afraid of self driving cars. I’m out living my life in the world yet I feel like I’m going nuts all day long because I have no inner voice anymore, just radio static. No memories, no emotions, no connection to what’s happening, just a radio in my head. My mind became afraid of existence itself, sometimes I’ll be standing in a store and can’t remember how I got there, or the drive. Then I’m like how am I even here? It’s freaky.

the radio noise in my head would drive anyone mad, sleep isn’t a break either. It goes from music to dreams, not one second of peace.


r/dpdr • • 10h ago

TW: Trauma/Abuse Details I went through hell, lost the way I used to experience life, and still never abandoned God — my story of ADHD, hypervigilance, emotional numbness, and trying to find myself again

2 Upvotes

I went through hell, lost the way I used to experience life, and still never abandoned God — my story of ADHD, hypervigilance, emotional numbness, and trying to find myself again

I'm a 20-year-old man from Romania, and I want to tell my story because I don't know how many people have experienced something similar.

I have spent years trying to understand why my life changed so profoundly. I've consulted multiple psychiatrists, undergone psychological assessments, documented my symptoms in detail, and tried different treatments. I've written pages upon pages trying to explain what happened to me, because describing it in a few sentences has never felt sufficient.

But this story isn't just about diagnoses, medication, or symptoms.

It's about the person I was before everything changed. It's about waking up one day feeling as though my own body had become a place of danger, then gradually losing the ability to experience pleasure, emotion, and the world in the way I once did. It's about trying to rebuild my life, experiencing hope, falling back into suffering, and continuing to search for answers when I was exhausted.

And above all, it's about my relationship with God.

I went through what felt like hell, but I never abandoned Him. God remains the center of my life.

I'm not writing this to diagnose myself through Reddit or to convince anyone that I know the exact medical cause of everything that happened. I'm sharing my experience because I want to be understood, and because perhaps someone reading this has lived through a similar change that they have never been able to explain properly.

  1. The person I was before everything changed

I was diagnosed with ADHD when I was young, but I didn't receive consistent treatment during childhood.

My difficulties were real. I struggled with attention, organization, impulsivity, restlessness, and activities that didn't interest me. I could lose things, forget things, and become frustrated when I had to force myself to concentrate on something that didn't engage my mind.

But ADHD wasn't the whole of my identity.

I was an energetic, curious, sociable, and emotionally expressive child. I loved discovering things. I could become intensely fascinated by a subject and spend hours exploring it.

When I was around five or six years old, I was already fascinated by mushrooms and nature, learning their Latin names and identifying them with my parents. I loved geography, biology, and chemistry. I developed a passion for dancing inspired by Michael Jackson and eventually performed in front of approximately 300 people.

I was interested in the world. I wanted to understand it, explore it, and experience as much of it as possible.

My inner world was also unusually vivid. I experienced synesthesia, spontaneously associating days of the week, people, places, and situations with particular colors and images. These associations were part of the way I naturally experienced life.

Emotionally, I could feel things deeply. I could laugh, cry, become fascinated by something, feel excitement, experience sadness, and be moved by music or films. I had a sense of spontaneity. I could become absorbed in an interest, feel motivated to do something, and genuinely enjoy the experience.

I wasn't a perfect person, and I wasn't free from difficulties. I was dealing with ADHD, and school required a great deal of effort. By high school, I was increasingly exhausted from trying to manage my difficulties without adequate treatment.

Nevertheless, I still felt like myself.

I still had my personality, my interests, my emotional range, my curiosity, and my desire to live.

That distinction is essential to my story: I wasn't someone who had always felt emotionally empty. I remember what it was like to feel alive in a very different way.

  1. November 8, 2024 — the morning my life changed

On November 8, 2024, during my high-school graduation party, I consumed a very large amount of alcohol while taking 5-HTP and propranolol. I don't remember the entire event clearly.

The next morning, I woke up in a state I had never experienced before.

I was extremely hypervigilant.

My body seemed to be permanently preparing for danger, even when I knew there was no danger around me. Ordinary sounds and movements could make me startle intensely. Someone appearing unexpectedly, a noise in the house, or a person suddenly speaking to me could trigger an exaggerated physical reaction.

I experienced palpitations, tremor, muscular tension, a persistent lump-in-the-throat sensation, and a feeling that my body was constantly on alert.

The strangest part was that I couldn't identify a corresponding fear in my thoughts. I wasn't necessarily imagining catastrophic scenarios. I could know intellectually that I was safe, yet my body reacted as though something terrible was about to happen.

It was as if my nervous system had stopped trusting the world.

During the winter of 2024–2025, the symptoms became progressively worse. This became one of the most difficult periods I had ever experienced.

My social life deteriorated. I frequently avoided leaving the house. I sometimes wore a hood because I felt exposed and vulnerable. At school, I couldn't relax because I was involuntarily monitoring noises, movements, and people around me.

Even at home, I couldn't fully escape it. Going down the stairs or unexpectedly encountering my parents could trigger intense startle responses. There were periods when I avoided leaving my room because I anticipated those reactions.

Alcohol temporarily suppressed the symptoms, and I began relying on it during weekends to feel relaxed and socially functional. But the following mornings, the hypervigilance often returned even more intensely.

I eventually recognized how destructive that cycle was, and during my subsequent recovery I stopped drinking completely. I have now maintained that abstinence for approximately a year and a half.

What matters most about this first period is that, despite the physical terror and constant alertness, I could still experience emotions.

I could cry. I could feel happiness and sadness. I still had motivation, interests, and pleasure. My personality was still there.

My body felt trapped in a state of danger, but my inner emotional life remained recognizable.

I didn't yet know that another, very different struggle was ahead.

  1. The first time I thought I was getting my life back

During the following months, I received treatment with Elontril and buspirone. I also gradually began exposing myself to situations I had previously avoided.

Little by little, things improved.

I began going outside without feeling as exposed. I could enter shops and pharmacies alone, walk in public places, pay bills, exercise, and socialize again.

I returned to the gym. I went for walks in nature. I watched films, played video games, and reconnected with activities I had abandoned during the worst period of hypervigilance.

These weren't insignificant achievements to me. They were evidence that my life could become larger than the fear that had consumed it.

For the first time in months, I felt that I was moving forward.

I began receiving treatment for ADHD as well. Concerta, initially at 18 mg and later at 36 mg, made a substantial difference in my concentration, organization, and ability to control my restlessness. My thoughts felt more organized, and conversations became easier.

For someone who had struggled for years to direct his attention and manage his impulses, this was a meaningful improvement.

But during this period, I was also exposed to substantial amounts of stimulation, including nicotine, several coffees a day, energy drinks, and prescribed medication, including modafinil when needed.

Over time, I began noticing changes that I didn't initially understand.

The things that once gave me pleasure started feeling less rewarding. Music affected me less. My fascination with the world diminished. My synesthesia, which had been part of my life since childhood, began disappearing.

I gradually lost the feeling of surprise and wonder that I had always associated with being myself.

At first, these changes were subtle. I didn't immediately understand their significance.

Then they became impossible to ignore.

  1. The emotional numbness — when knowing something is beautiful is no longer the same as feeling it

This is the part of my experience that I find hardest to explain to people who have never lived through it.

After the period of hypervigilance, I began experiencing persistent derealization and a progressive loss of pleasure. I knew that the world around me was real, but my experience of it had changed.

I could recognize familiar places, listen to familiar music, and remember why I loved certain activities. Yet the experience itself felt different.

The world was still there, but my connection to it felt weaker.

After my baccalaureate examinations, my stimulant treatment was stopped completely. Approximately a week later, I experienced a severe deterioration.

My anhedonia became much more pronounced. I struggled to experience pleasure, sadness, anger, or other emotions with the intensity I had known before. I often couldn't cry, even when I desperately wanted to.

My mental clarity deteriorated. I experienced severe fatigue, mental fog, difficulties concentrating, reduced initiative, and problems remembering recent events.

The passage of time began to feel different, too. Days seemed repetitive, almost indistinguishable from one another. I could know that time was passing without feeling the normal psychological continuity that had once connected my experiences.

I wasn't claiming that the world had literally become unreal. I knew where I was and understood what was happening around me. The problem was that my subjective experience of being present in that world had changed.

I could intellectually understand that something was sad without fully feeling the sadness. I could recognize that a piece of music was beautiful without experiencing the emotional response I expected. I could remember how much I loved something while feeling almost nothing when I returned to it.

For months, crying became extremely difficult.

I missed the ability to be moved by music, films, nature, prayer, and ordinary moments. I missed the spontaneous emotional reactions that had once been part of my life.

I even missed being able to experience sadness fully.

That may sound strange, but sadness is still an emotion. Grief means that something matters to you. Tears can be a form of release. When even these responses become inaccessible, the absence itself becomes painful.

I wasn't asking to suffer more.

I wanted to feel that I was participating in my own life again.

My facial expression became more rigid. My spontaneity diminished. I lost much of my motivation to take care of my appearance, go out, pursue interests, or do things simply because I wanted to.

Activities that once gave me energy became difficult to initiate. My hobbies began to feel empty. Even eating could lose much of its pleasure.

I was still capable of thinking, speaking, and understanding the world. But the way I experienced it from the inside had changed profoundly.

It felt as though I could remember the person I had been without being able to access all the qualities that had made that person feel so alive.

  1. Trying to find an explanation through psychiatry

Since then, I have consulted multiple psychiatrists and tried several different treatments.

My treatment history has included medications such as venlafaxine, sertraline, escitalopram, paroxetine, Elontril, Concerta, modafinil, mirtazapine, trazodone, lamotrigine, olanzapine, pregabalin, and others at different points.

I'm not listing these to suggest that every medication caused harm or that medication is inherently bad. Different treatments affected different symptoms, and some provided meaningful benefits.

What has been difficult is the inconsistency of my experience and the feeling that I have never found a stable, comprehensive explanation for the changes I went through.

One of the most significant periods occurred when I was prescribed sertraline 50 mg together with Elontril 300 mg.

After approximately two to three weeks, I experienced a substantial improvement.

I gradually regained the ability to cry. Sadness became accessible again. I could experience pleasure and renewed interest in daily activities. My libido returned closer to its previous level, and I felt much more capable of functioning.

I returned to the gym, obtained a job, and enrolled in university.

For the first time in a long while, I felt that I was getting closer to my former self.

That period remains important to me because it demonstrated that my emotional state could change. The numbness was not necessarily an unchangeable condition.

Unfortunately, the treatment was later modified. I subsequently received escitalopram, lamotrigine, and olanzapine, and I experienced increased emotional blunting and substantial weight gain. Later, after another treatment discontinuation, my fatigue and cognitive difficulties worsened significantly.

I eventually struggled to maintain employment, continue university, exercise, and perform ordinary daily activities.

My family found it difficult to understand the severity of my condition at first. From the outside, it can be hard to understand how someone who can still speak, joke, use a computer, or explain his symptoms can simultaneously struggle so much with motivation, energy, pleasure, and everyday functioning.

I have tried to explain that the changes in my emotional expression and personality were not simply lifelong traits. I remember how I functioned before these events. I remember the contrast.

I also understand that a sequence of events does not automatically establish medical causation. Alcohol exposure, severe physiological hyperarousal, ADHD, medication changes, mood symptoms, and other factors may all be relevant. I still need qualified professionals to help me understand the whole picture.

But I know that the changes happened, that they were severe, and that they affected almost every part of my life.

  1. My DIVA-5 assessment and the life I lost along the way

In July 2026, I underwent a psychological assessment that included the DIVA-5 and other questionnaires.

The DIVA-5 recorded all nine inattentive symptoms and all nine hyperactive/impulsive symptoms in both childhood and adulthood. The assessment concluded that my presentation was consistent with combined-presentation ADHD.

My childhood history also included intense interests, high energy, difficulty sustaining attention when something failed to engage me, and substantial organizational difficulties.

The report documented impairment in education, employment, relationships, social life, and everyday functioning. It also recorded symptoms involving depression, anxiety, and trauma-related experiences.

This assessment helped document the ADHD difficulties that had existed long before my more recent deterioration. It did not, by itself, explain every change in my emotional and perceptual experience.

That distinction matters to me.

I don't want my entire history reduced to ADHD, just as I don't want ADHD erased from the story. Both my childhood difficulties and the later changes deserve to be understood in context.

Before all of this, I could struggle with attention and organization while still feeling energetic, motivated, curious, and emotionally connected to life.

Now I have had to fight for capacities that once felt natural.

I have lost periods of my life to exhaustion, confusion, treatment changes, and the attempt to understand what happened. I have struggled to maintain employment and education. I have watched my social life and daily routines shrink.

And perhaps the most painful part is that I remember what I am missing.

I remember being fascinated by things. I remember how music could make me feel. I remember crying when something touched me. I remember the spontaneous desire to go somewhere, try something, or discover something new.

I miss those things not because I think my former self was perfect, but because those experiences were genuinely mine.

  1. The part of my story that cannot be reduced to symptoms: God

Through all of this, there is one thing I want to make absolutely clear.

God is the center of my life.

I am an Orthodox Christian. God is my Heavenly Father, and Jesus Christ is the Way. My faith is not an accessory to my identity, something I mention only when life is going well. It is central to who I am.

I have experienced periods when I was frightened, exhausted, confused, and unable to understand what was happening to me. I have experienced days when I could barely initiate ordinary activities and nights when I desperately wanted to feel something that seemed inaccessible.

There have been times when I prayed and wished I could be moved by prayer. I wanted to cry. I wanted to feel the warmth, the emotion, and the depth that I associated with my relationship with God.

Sometimes I could not feel those things in the way I wanted.

But I never concluded that my inability to experience an emotion fully meant that my faith had disappeared.

I never wanted to abandon God.

I kept praying. I kept asking questions. I kept returning to Him, even when I was frustrated, even when I was exhausted, and even when I could not understand why I was going through this.

My prayers have not always been beautiful or composed. Sometimes they have been filled with questions, pain, and frustration. Sometimes all I could do was tell God that I was tired, that I missed myself, and that I did not understand what was happening.

But I still turned to Him.

I have never believed that I must pretend to be fine in front of God. I don't believe that I have to hide my suffering, manufacture emotions, or produce the perfect prayer to be His child.

My faith does not mean that I have never felt desperate. It does not mean that I have never questioned why things happened or wished that my suffering would end.

It means that, even in the middle of those questions, I never stopped loving God, and I never stopped wanting Him in my life.

There is a difference between not understanding God's ways and abandoning God. There is a difference between being emotionally exhausted and no longer caring about Him.

I have experienced the first without choosing the second.

I have asked Him why. I have told Him that I am tired. I have told Him that I miss the person I used to be. I have asked for help, clarity, strength, and the ability to feel alive again.

And I have continued to return to Him.

I cannot explain every medical symptom through faith, and I do not believe that I should have to choose between psychiatric care and my relationship with God. I can seek professional help while continuing to trust Him. I can acknowledge that I need treatment and support without treating my faith as something that must be replaced by a medical explanation.

My faith is not a claim that suffering is easy or that prayer makes every symptom disappear.

It is the foundation on which I continue to stand while I try to find my way through it.

  1. After the hell I went through, I still believe that my story is not over

I don't want this story to end with the idea that I have lost everything.

I have lost a great deal of functioning, time, confidence, spontaneity, and the ability to experience pleasure in the way I once did. I have gone through periods that I would never wish on anyone.

But I am still here.

I am still trying to understand what happened. I am still looking for the right professional support. I am still trying to rebuild routines and recover the ability to participate in daily life.

I am still the person who loved nature, music, films, learning, and discovering things. I still care about my faith, my family, and the possibility of experiencing life more fully again.

I may not be able to access every part of that person in the way I once could, but I have not forgotten him.

And I have not abandoned God.

When I think about the person I used to be, I don't want to turn my past into a prison or spend every day measuring how far I am from it. I want to recover what I can, understand what happened, and build a life in which I can once again feel connected to the things that matter to me.

I don't know exactly how long that journey will take. I don't have a definitive answer for every symptom. I don't know what the final explanation for my experience will be.

But I refuse to pretend that my suffering is the entirety of my identity.

I am more than a diagnosis. I am more than my treatment history. I am more than the months or years in which I struggled to feel pleasure. And I am more than the version of myself that other people see when they look at me from the outside.

I am a person who remembers what it was like to feel deeply, who wants to recover, and who continues to seek help.

And I am a Christian who, even after everything I have been through, still turns toward God.

I went through hell, but I did not go through it by deciding that God no longer mattered to me. He remained the center of my life. I kept loving Him, praying to Him, and asking Him to help me through what I could not understand.

My faith has not erased the suffering. My suffering has not erased my faith.

Both truths are part of my story.

I want to get better. I want to feel again. I want to regain my energy, curiosity, motivation, emotional depth, and connection to the world. I want to build a meaningful life rather than spend it trying to explain why I no longer experience life as I once did.

I am still searching for answers, and I am still seeking professional help.

But I am not giving up on the possibility of recovery, and I am not giving up on God.

After everything, I am still here. I still believe. I still love Him. And I still hope that one day I will be able to look back on this period of my life and recognize how far I have come.

If you have experienced a profound change in your emotional life, your sense of reality, or your ability to feel pleasure, I would be grateful to hear your story. If you have struggled through years of uncertainty while trying to find the right treatment, I would like to hear what helped you communicate your experience and keep moving forward.

And if you are someone who has gone through a long period of suffering without losing your faith, I would especially appreciate hearing from you.

I am not looking for strangers to give me a diagnosis or promise me a cure. I am looking for understanding, shared experiences, and the possibility of connecting with people who know how difficult it can be to explain an experience that has changed your life.

Thank you for reading my story.​


r/dpdr • • 6h ago

TW: Existential/Spiral i’m losing my mind

Thumbnail
1 Upvotes

Does everyone hate me? i feel like eyes are on me at all times, i can’t feel when people touch me i keep zoning out. i have a very meticulous plan for not eat anymore ever again until i starve to death. guys what is happening to be i even wanna start using cigarettes for no reason im tired what is happening i haven’t slept in 4 days i cant feel anything


r/dpdr • • 7h ago

Psychiatry/Medication Question Finally ready to seek help- where to start?

1 Upvotes

I have experienced PTSD induced dissociation since I was a teenager, with it peaking in a mental health crisis when I was 17. I was diagnosed with DPDR then. I am now in my 20s and while there were a few years where it was okay, the past year or so has been very difficult regarding my dissociation. I struggle to recall basic information and memories, like the date or information I usually have access to mentally. I feel like I am experiencing life through a haze and cannot fully enjoy it. I am at the point where I feel I need to consider professional help again. I feel very overwhelmed with where to start and not feeling discouraged. What helped you? Talk therapy? Any medications in specific that I should ask about?
Thank you 🙏


r/dpdr • • 12h ago

Question Trouble focusing/multitasking?

2 Upvotes

When someone is talking to me and I’m reading something, it’s harder for me to pay attention to both. I used to be able to pay attention to both, and not have a problem. I used to be able to multitask, I feel like I can’t as much now. I’ll have a single thought and lose it quickly after a few seconds, but I used to be able to have multiple at once and remember them.
Does anyone else have this?


r/dpdr • • 12h ago

Need Some Encouragement Title: Sudden feeling that recent memories happened a long time ago after waking up

2 Upvotes

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I'm 16 and I've been experiencing derealization for around 7 months.

Tonight, I had a very stressful day with a lot of anxiety and panic. I was feeling a little better later at night, but I couldn't sleep. At around 2 AM, I briefly fell asleep for about 10 minutes and suddenly woke up.

After waking up, I noticed something strange: memories of things I had done just minutes earlier felt as if they had happened a very long time ago. I remember everything clearly—for example, writing physics notes, playing FIFA, and watching YouTube before falling asleep—but those memories feel strangely distant and unfamiliar, almost as if much more time has passed than actually has.

Even memories from earlier this morning feel far away. I know what happened and when it happened, but the feeling of time and familiarity seems completely off.

I've also been sleeping very poorly lately.

Has anyone with derealization or DPDR experienced this, especially after waking up from a short nap or after severe sleep deprivation? Did it go away?

I'm not asking for a diagnosis; I'd just like to hear whether anyone has experienced something similar.

I've also been asking ChatGPT for help, but it keeps telling me to contact emergency services, which makes me even more anxious and scared. I understand that it can't diagnose me, but hearing that over and over again is really stressful.

For those of you who have experienced something similar, what did you do when this happened? How did you deal with it?


r/dpdr • • 9h ago

Question Do I have DP from smoking weed?

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1 Upvotes

r/dpdr • • 1d ago

Need Some Encouragement I’m making the most money I ever have, have my own business and success, lots of great friends. My life is more stable than it’s ever been my entire life. Yet there’s no me experiencing it

10 Upvotes

I have everything I ever wanted, because i worked extremely hard for it, despite all the shit cards I was dealt. Yet I’m still not here to experience it as me. I sometimes wonder if I’ve only been successful because I’m dissociated and there’s no person inside to experience the bad or good feelings, making me super focused and driven.

i do have small moments of appreciation, happiness, connection, but theyre nothing like before Dpdr. It’s like a whisper and then it’s gone. I’m not unhappy, I’m not depressed, im not even sad. I know I have a good life and I feel grateful for what I do have, I’m just not able to experience it with any depth or sensory experience, no feeling of this is me and my life. The dissociated version of me is who I now identify with after so many years like this, and in a way I’ve deeply accepted that. This has been my normal for so long, the before times are not normal now. I forget what normal feels like, because this is normal to me after 5 years.

its hard to explain that i could still have a lot of motivation for my career, my business, my friends. And surviving. But it’s not who I remember being and feeling like my entire life. I’m unaffected by negative things, and not super affected by positive either. Which after a whole life of bad shit, it feels like a warm blanket. I think that’s why I haven’t healed. My system sees this is safe and protected, so why change?

my dreams are where i feel the danger, the fear, the longing for connection, the never ending search to get back to myself and my life. The dreams are like this weird distorted map of my actual reality, nothing is the same as it is in real life. Picture like a Lego version of your life on another planet. They happen endlessly and then I wake up to this. I’m not sure I even have the words to describe it all anymore. But I will say, today I experienced this shock realizing how many years I’ve been this way, it’s astounding, I don’t think I’ve really thought about how deeply I am in this and what parts of life are just gone. i also realized how strong I am to keep going and building a life that I’m not even able to experience or enjoy. In the last few years I’ve weathered more than anyone should have to, while continuing to work, to keep a roof over my head, all by myself. No help.

what’s that saying, you don’t know how strong you are until you have no choice but to be. I’ve had no other choice. I don’t see a life without this condition and thats not me being negative, it’s being realistic. after 5 years my mind has learned this and theres no reason for it to let go. Some of us just have been dealt shit cards jn life, and we are usually the ones that never give up and keep going, when most people would break.


r/dpdr • • 17h ago

Question Wisdom tooth removal / anesthesia

2 Upvotes

I have to get wisdom teeth out this week. And I have to go under all the way. Medazolam. Propofol and fentanyl. I’ve never been put under. I’ve dealt with DPDR for a long time. But have been better lately. Any experience? Will it be okay?


r/dpdr • • 14h ago

Question Keto? Did it help you?

1 Upvotes

Considering trying it. Did it help you?


r/dpdr • • 14h ago

Need Some Encouragement Something is Missing

1 Upvotes

New to Reddit so I don’t know if this is the right subreddit or anything but I need to ground myself and talk this out. any advice or relatabulity is appreciated

So I've dealt with derealisation/depersonalization (not diagnosed, but im fairly certain) for quite some time. nothing bad has happened that I can pinpoint, I’d say I had a really good childhood but it started around COVID, when I had some other issues.
Recently ive moved to college, new city, etc. Its my first time on my own and this really doesnt feel like its happening To me

Ive never really had a passion for learning or doing anything to a point of a career. I have interests, but not to a degree that I would want to do that for the next 4 yrs, not to mention possibly the rest of my life.

I think this comes from not being able to imagine my future. It sounds grim but since I turned around 14/15, i havent been able to imagine my future. When i was 9, i could image being 11, when i was 11 i could imagine what it would be like to be 12, etc. But I couldnt imagine what it would be like to be 16,17,18 etc. I still cant picture my life in the future.

I remember when I was stuck in quarantine I had my first major derealisation "episode". I was sitting on the floor and I looked down at my hands and felt like they werent mine. Its hard to explain to someones whos never felt it, but it feels like im watching a movie of day to day life through someone elses eyes.

This was also around the time I began not being able to picture myself in my future. I joked that I would just black out on my 16th birthday, but ofc i didnt.

To tie this back to the beginning, I feel like something is missing. Like theres an itch I just cant scratch and its been driving me crazy the past couple days. I dont know how to describe it. It’s like theres something I need to do in order to get over this block. Except I dont know what that something is. it also feels like im not getting enough sleep (which i am, but i still always feel tired)

Its a weird parallel to draw, and I wouldn't know how addiction feels, but this "something is missing" feeling feels like "I need a drink/smoke" if I did have an addiction For the past few days ive been debating buying cigarrettes which is stupid, and I know I shouldnt. Ive never smoked, i dont want to start a bad habit, but at this point i feel like i need to redirect my mind onto something else.

Everything’s been feeling so cloudy lately. and i have tests coming up i need to study for but im having a hard time mustering up the will to do anything.

I still havent truly processed that Im in college, that ive made a FOUR year commitment.

And honestly, a commitment to something im not even truly passionate about. I lied to everyone saying I find this subject interesting. I dont. maybe not yet, im not sure. I chose path this because its a good career, which is the whole point of college. I know people dont get jobs because its their destiny, they get jobs to make money. Which is my thought process, but it worries me that Theres really nothing I WANT to do. I enjoy doing things, I play music except I dont want to learn new pieces to play. I feel like I cant get over the difficulty phase of things, so I avoid doing it at all.

I dont want to deal with anything that comes with existing, and not to say that its not worth it, but sometimes it feels like that.

This doesnt feel real, and nothings felt "real" in a while, and I fear that the day I "snap back" into reality, I'll realise that this isnt what I wanted at all, that ive made the wrong decision 5, 7 , 10 years ago and now im years behind the point of changing the course of my life.

I feel that fear already, even though im young, not even in my early 20s, but living this life feels like its not mine. The choices I make dont effect ME, even though this /is/ MY life. It feels like the life im experiencing is the life im watching through someone elses eyes.

Anyway, I needed to get this out of my system. Thanks


r/dpdr • • 16h ago

Question How to watch horror movies

1 Upvotes

I have incredibly thankfully recovered from constant DPDR, had it horribly in highschool for a while after some drug use and through therapy & help I do not experience it like I used to. I do notice that it almost seems to creep back in for about a day after watching a horror movie in a theatre, and then I can shake it off. The issue is, I love watching horror movies but I don’t want to do this so much with the same issue arising that it comes back. Does anybody experience this and have found a way to deal with it or should I just limit this activity?


r/dpdr • • 17h ago

Question would you travel in my situation?

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1 Upvotes

Hey everyone
I really need some advice because I don’t know what to do anymore.

I’m supposed to go on a 10 day trip with my family but I’m scared because of the dissociation and anxiety I’ve been struggling with lately.

Right now I keep getting these really strange feelings. It’s hard to explain but it feels like something is floating or moving from side to side inside my body. My eyes also feel weird and sometimes I get dizzy and feel almost shocked by the sensation. It scares me because I don’t understand what’s happening. Sometimes it honestly feels almost like I’m losing my mind even though my body is completely calm and still. I get confused very easily like my mind feels overwhelmed and I struggle to sleep because of these feelings.

The worst part is that I can barely go out anymore. Whenever I go somewhere with my family or friends I can usually only stay for about an hour before I desperately want to go home. I just don’t feel comfortable being outside and I keep thinking about getting back home where I feel safer.

I’m not on any medication and I’m really scared of experiencing these feelings while travelling. I keep thinking about how I’m supposed to spend 10 days away from home when I can barely manage being outside for an hour right now. I’m afraid if the whole trip will be hell for me.

I also had some really severe episodes in the hospital around three years ago and I’m terrified of feeling the same way again. I think that fear is a big part of why I’m so scared to travel.

I want to go with my family but at the same time I genuinely don’t feel ready. I don’t know if I should go or stay home and I feel so unsure about everything.

I also don’t know if these feelings could have something to do with being really relaxed or lying in a certain position when they happen. I’ve wondered if that could be a reason but I honestly have no idea if it makes a difference. It feels more psychological to me but the physical sensations are so strange that they scare me and I don’t really know how to explain them.

Has anyone experienced something similar with dissociation? Especially the strange physical sensations, feeling confused or disconnected and being scared to leave home because you’re afraid of having an episode?

I would appreciate hearing from anyone who has been through something similar. I honestly don’t know what to do anymore.


r/dpdr • • 1d ago

Progress Update I cried!!

15 Upvotes

I was already a less emotional person before my derealization, but in the last year and a half of it, I've become even worse. I can hardly ever cry, but I've cried twice in the past week and a half! This might sound stupid to some, but to me I see it as an accomplishment because in some way my mind is allowing me to feel these emotions instead of blocking them out and making my derealization worse