r/dwarfism • • Jan 11 '22

In Memory of Andy (/u/SmallManBigMouth)

133 Upvotes

Unfortunately today I received a message on Reddit that lead me to check on Facebook. The other moderator of our subreddit, /u/SmallManBigMouth, recently passed away. All of the details of his passing are unknown as I post this, but I do know it's going to leave a hole in our staff here, and he is definitely missed. He definitely was always a level head and tried to be fair in all of his dealings.

Rest Easy Andy. August 15 1979 - Jan 6 2022


r/dwarfism • • 13d ago

Do you have questions as a parent or parent-to-be to someone with Dwarfism? ASK THEM HERE!

10 Upvotes

Welcome to our monthly "AMA" for parents/parents to be! Are you a new parent or expecting a child with dwarfism looking for resources? Maybe you're a seasoned vet with grown kids and you want to share what worked for you. This is the place! As things are suggested we will add resources to the main body.

We do not discriminate in this thread, whether you're an average height parent or an LP parent, don't be afraid to ask! Please keep the questions relevant to child growth / parenting / etc if at all possible!

If you have a question, but would rather it be asked without your username attached, feel free to use ModMail and I or another mod will post it in the thread instead!


r/dwarfism • • 7d ago

Trying to lose weight

7 Upvotes

So, I'm 4'0" and 20 years old, born male and since December of 2025 I've been trying to lose weight. For most of my teen years I was always around the 62-65kg range, which is a normal weight and is comparable to my average height twin sister's weight, however, visibly I am overweight.

I'm now down to around 56.5kg, and while that's a good weight, and for an average height person would even be petite, I'm still not at a weight where I'm happy. I'm making visible progress, but not quite there yet. Looking at other people with dwarfism who are visibly smaller with a more lean body, which is what I'm aiming for, I'm forced to assume they're closer to 50kg or less.

But I wanted to get some direct thoughts from others, since it's quite difficult to find specific weight information for our conditions. For those who are comfortable and may have a body type closer to what I'm working towards, what would you guys say your weights are so that I can maybe at least set a base goal to aim for?

Thanks for the help! :3


r/dwarfism • • 8d ago

trying to make my boyfriend's life more comfortable

7 Upvotes

Hi all,

My boyfriend is an adult with achondroplasia. He's about 4'5". He has back issues and terrible posture, and he says every single chair he sits in is uncomfortable because his thighs aren't long enough and his feet don't touch the floor. I want to get him a better desk chair. Does anyone have a desk/office chair they recommend?

I'd also like to get him some more stuff to just make him more comfortable in every day life. He is terrible about taking care of himself and isn't very proactive when it comes to getting himself accessibility aids. Do you recommend any sort of additional products to aid around the house or day to day?

Thanks!


r/dwarfism • • 8d ago

The relationship with parents of average height

5 Upvotes

I’ve been wanting to write a post on this sub for a while, and today I finally worked up the courage to do so. I am 32 years old, have pituitary dwarfism, and stand 105cm (3'6) tall. I wanted to compare notes with the community to see if you have experienced, or are currently experiencing conflict-ridden relationships with your parents, particularly those of parents in average height. Despite my age, I still live with my mother, largely for financial reasons, but also because she has always exerted a suffocating level of control over me and my life. She often makes decisions for me and imposes her will on me, a dynamic reinforced by the physical difference between us. In the past, to avoid triggering a reaction from her, I always gave in to her wishes; on the rare occasions I tried to stand up to her, I always ended up defeated. This situation is weighing on me more and more as time goes on, and I’d like to read your stories to understand if I’m the only one going through this or if others have faced similar situations. thank you all....


r/dwarfism • • 10d ago

Are you apart of the LPA community?

10 Upvotes

If you’re are an adult what is your experience with the little people of America community and event’s?

(26 year old male with Achondroplasia)
As a child my mom was approached by social workers and many community members to try and get us to join but we never did (my choice). Now as an adult it can kinda seem lonely not being apart of it. I don’t have any friends or anybody with dwarfism around me and although before it never felt like I was missing that, as an adult now I wish I made that effort.


r/dwarfism • • 10d ago

Body dysmorphia

12 Upvotes

I’m suffering majorly with body dysmorphia due to my dwarfism. I have pituitary dwarfism and get a remark on my looks every single time I leave the house. I get people who think my child’s my brother and my fiance is my father. We just went to the store as a family and the lady bagging our groceries looks at me then my baby and goes “are you even grown?!” I’m sure she didn’t mean for it to sound rude or come across that way but it definitely offended me. It’s just so exhausting emotionally and mentally not being seen as adult or even a parent. I’ve tried it all, makeup, hair, and clothing and the oldest I ever get mistaken for is 17. 😔 anyone else the same boat as me? I just don’t wanna feel alone in all this


r/dwarfism • • 11d ago

wheelchair usage

2 Upvotes

Im sorry i don’t feel like providing a backstory for my question😭 but I have heard that people with achondroplasia will rent wheelchairs sometimes, so what types of wheelchairs are usually rented and for what kind of occasions? Or do you ever do this at all??


r/dwarfism • • 11d ago

my

7 Upvotes

​I’m writing this without revealing my name, just sharing a piece of my soul that I’ve kept hidden for far too long.

​I am a young man standing at 1.38 meters (about 4'6"). Physical challenges exist, but honestly, they pale in comparison to the psychological weight I carry every single day. The hardest part of my life isn't my height—it's how the world around me reacts to it.

​Where I live, I feel entirely marginalized, invisible, and unwelcomed. Every time I step outside my front door, I become an attraction. People stare, point, and chuckle. It feels like my very presence is treated as a joke. Over time, that constant judgment eroded my confidence to the point where I simply stopped wanting to leave my room. I’ve isolated myself just to shield my peace from the outside world.

​The environment I’m in doesn’t offer me basic emotional safety, proper accessibility, or the space to pursue my real dreams. I don't want much—I just want to walk down a street without feeling like a spectacle. I want to live freely, work hard, and be treated as a human being with ambition, not defined by a physical measurement.

​My biggest dream right now is to build a new life elsewhere—to migrate to a place where diversity is respected, where rights are guaranteed, and where I can actually feel safe and happy. I also deeply wish to connect with a community or people who share a similar path, people who understand what it means to navigate this world from my perspective.

​I’m sharing this because I’m tired of hiding. I want to take control of my story, rebuild my mental strength, and find a path toward a dignified future.

​If anyone here has ever felt like an outsider in their own hometown, or has overcome similar struggles, I’d love to hear your story. How did you find your place in this world?


r/dwarfism • • 11d ago

What tools do you help to reach for stuff in your car while driving like using your phone for a gps?

3 Upvotes

What tools do people us to help reach stuff when seat belt in and driving because it can be hard to reach for things like updating a gps or pressing a button on the console with getting out of your seatbelt? Anybody have some tips?


r/dwarfism • • 12d ago

Daughters new friend

10 Upvotes

Hello my daughter has a new friend who is a little person they are 6. What are some things we should be telling her to do /not do with this new friend. I know the big ones are don’t pick them up and also ask questions not just assume they need help. She can be quite rough with her other friends. So we want to make sure she’s being kind and safe.


r/dwarfism • • 14d ago

Any advice?

6 Upvotes

I'm an average-height person and my signifcant other has dwarfism. His dwarfism is the only cause of traction between him and my parents. I'd like to ask for advice on how I can go about this with my parents. Thanks!


r/dwarfism • • 18d ago

Advice needed. Is this worth pursuing?

4 Upvotes

So I recently moved into student housing, and as most student housing goes it was furnished.

Overall thats not an issue. The issue is the bed frame is fucking tall. Im 4ft8 and the frame+mattress sits at around my belly button. I have to physically climb into my bed.

I know a lot of frames similar to this are adjustable but this one is not and maintenance only gave me the option of removing the frame entirely like that is anymore helpful.

I do have a form of dwarfism (Turner Syndrome). But i do know I am on the taller end of that spectrum so when it comes to asking for legally protected accommodations I have had a bit of a hit or miss history with it.

From my understanding since they provide the original bedframe if it is inaccessible to me it is up to them to get a suitable option weather they have one on hand or not, for context i live in the US so the ADA is in place. But all things considered, yes its annoying but ive been finally getting proper medical attention this past year or so and despite all odds it looks like currently my Turners isnt really affecting most of my body systems yet, including my musculoskeletal which I know would probably be the main concern in a situation like this.

But I do feel like it might be worth it to try and go and push for it? I feel like they shouldn't be using such high and non- adjustable frames in a place where its provided anyway-

So I figured maybe some other folks might have some insights on this and I could better come to a decision on how to proceed.


r/dwarfism • • 20d ago

Rollerskating w Achondroplasia advice?

12 Upvotes

Hi! I just recently got my first pair of rollerskates and I'd been wanting to actively rollerskate all around my uni campus, but I've run into a few things that were affecting my drills and movements. I'm about 3'11" and 85lbs so my center of gravity, weight distribution, and overall body type is a bit different compared to the people making tutorials lol.

Basically, I've been having trouble with turns (idk if I'm putting enough weight in leans for turns or what) and overall mobility due to the boot ankle support being halfway up my calves.

If there are any fellow rollerskaters with achondroplasia who have advice or tips, please please please lmk!! I'd also love to just connect with y'all ^v^


r/dwarfism • • 21d ago

Where to get professional shoes?

8 Upvotes

I have a mild form of dwarfism (i’m like 4’8-4’9) and often have a hard time with clothes but because my specific type is disproportionate and my limbs are a lot shorter than the rest of my body and hands and feet a lot shorter as well certain things are just harder to find and one of those things is shoes. i can get away with sneakers and such because there’s such a variety in what you can get in kids sizes in terms of style and shape but with formal shoes… it’s harder. All the adult sized shoes tend to be too long all the kids sized shoes are too thin or too immature and I just need a pair of shoes I can wear to the office. Pipe dream wide I’d love a pair of versatile heals. Have any of you had any success finding work/office shoes that fit feet that are more short and wide? Where did you find them?


r/dwarfism • • 24d ago

How do you think, as a society, we can grow?

15 Upvotes

I (21, F) have achondroplasia, which is the most common form of dwarfism (3,10). No one needed to tell me I was different, because society told me by the way they treated people like me. From Hollywood movies to going to school to wearing clothes, I knew from a very early age that the world was not made for people like me. I would go to the doctor and get advice, and I would be told things about how to manage my weight when there weren't even enough studies on people with dwarfism. I felt alone; I learned to hate myself because I was never gonna be enough according to standards. I would close my eyes and dream of what I could be skinnier and taller, and just think that if I were her, I would be happier and people would understand me more. Watching movies with people with dwarfism, I learned to the outside world, I am merely a spectacle. As I got older, I learned about the history of dwarfism thousands of years of dehumanization, which includes things like P.T. Barnum. During this time, the m word was popularized—originating from the word midge (a tiny biting insect) and used to market short-statured individuals for public amusement and profit. Other events include things like the Ugly Laws or Dwarf Tossing and much, much more. But society today is different, especially from 10 years ago, and with that comes representation, understanding, accountability, and education. How do you think we as a society can grow?

  • Feel free to express anything; this is a place of conversation and learning
  • It's better to have an uncomfortable question than an ignorant assumption 
  • Thank you
  • (Also, by sharing my personal life, it isn't to be in a pitying way but to give you an understanding of my background)

r/dwarfism • • 27d ago

Waiting for screening results for dysplasia due to lagging long limbs (no other indicators). Does she have trident hands?

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0 Upvotes

r/dwarfism • • 28d ago

Wedding dress

8 Upvotes

I recently got engaged and have been wondering where to even try on wedding dresses having dwarfism. For those who got married where did you find your dress and how did the whole process go?


r/dwarfism • • Sep 11 '26

Late diagnosis stories

6 Upvotes

Hi! I am wandering if there are any parents out there who have a child with dwarfism and did not find out until after birth or even later in infancy/childhood. I would love to hear your stories as I am curious about my own little girl.
I currently have a 6 month old who is happy and healthy! To the naked eye you would not think anything of her. Prenatally she was followed closely on ultrasound due to her long bones measuring very short, 1% tile. They noticed no other features that aligned with achondroplasia or any other type of skeletal dysplasia. The doctor thought that her short long bones may be an isolated finding and that she just might be a short girl.
Well now at 6 months I am starting to wander. To me, her extremities look very short, she went from 40th percentile to now 5th in height, and some of her facial features like her forehead and nose make me question.At the end of the day, the diagnosis does not matter. I just want her to be happy and healthy. But I want to know for her sake and the resources she might need down the road. I want to be proactive, but it’s hard when there are no definitive findings with her at this current point. It seems like only time will tell but it is hard for me to just sit around and see how she grows.
Would appreciate any and all information/advice/personal stories! Thanks.


r/dwarfism • • Sep 11 '26

Living in this world

17 Upvotes

Hello, I have achondroplasia (not sure on what precise type) and I am finding it hard to see a bright future for myself. My grades at college were great and im heading to university but every so often I keep reiterating the purpose to exist in such a cruel world. It may come across as young anxiety but I have always been feeling like people are pointing or laughing or creating comments about me (and us) and its just getting to my head, and I keep realising that this is permanent, as humans are pretty silly nowadays. Children are worse, ive had it twice this year where ive been remarked as “little boy” or taunted at which frustrated me to extreme measures as I cant do anything back due to legal reasons; I remember one so well unfortunately, he was walking past me and he said “little little boy” but when he saw my face he went dead silent.

Anyway, thats all a rant but I just wanted to ask how people continue to exist with peace or happiness, I know of a friend who tackles it through therapy and one who smiles it off but I just fear that I wont be able to live an uninvaded and peaceful life.

(Super duper sorry, I dont know whether this is okay for reddit, this is just me getting stuff off my chest)


r/dwarfism • • Sep 10 '26

Dwarfism Awareness Month

10 Upvotes

I have identical twin nephews with achondroplasia (3yro) and we are planning to work with another LP in the community to put on educational event for dwarfism awareness month coming up. Was curious if anyone had any creative ideas that aren’t just a straight lecture format that would be engaging and informative for adults and children?


r/dwarfism • • Sep 08 '26

Wanting friends my size…. How sad does that sound? Yeesh….

8 Upvotes

i’m a 53 yo with Escobar syndrome, i’m 4’6” & 63 lbs.( I have a GI condition unrelated to the “disability” that makes eating a pain in the butt, I’m very thin but don’t worry I’m under a dr’s care and a nutritionist) because I don’t have achondroplasia I’ve never joined LPA because I thought I wouldn’t be accepted…? I’ve never had a friend near my size and really wish I did. I don’t feel like I’m taken seriously by average sized folk. My husband is 5’1” so I’m very lucky to have found him. Anywho, do you think I should join? I have all kinds of mobility issues, buying clothes is so hard and I just want friends who “get it”.”


r/dwarfism • • Sep 02 '26

What is your weight and height?

8 Upvotes

I (24M) have Achondroplasia and I am 4ft 3inches tall. Currently I sit right at 145lbs and this fluctuates non stop between 140 and 146. I used to be way heavier at 185lbs when I was in high school. Doctors told me I needed to cut back and so I did; I started exercising, lifting weights, eating less food, and way healthier food in college. At my lowest I dropped to 126lbs. I felt really good at that weight, and I still feel good where I am currently at (even though I would like to lose a bit of fat).

The reason I gained weight back is because I took about a year off from lifting and slowly rose back up. However, I have been maintaining right at 145 just doing what I am doing. I am working now, so I have less free time, but the last few weeks I have started lifting again twice a week. I'm doing basically the exact same routine, but not shedding any pounds but would like to at least get down to 130.

Anyways, I was just wondering about what an average weight to height ratio would be? The BMI charts are all out of whack and don't work. I know for us it is more about how you feel, how your bloodwork looks, how your legs feel, etc. I would just like to gauge an average is all, for anyone who does not mind sharing.