After sepsis and a coma, I lost parts of both feet and several fingertips.
When people ask what I can do, “almost everything” is usually the easiest answer. I walk, drive, type, and carry my daughter. But that answer leaves quite a lot out.
I can type with all my fingers, but the sensations are wrong and unpleasant. Typing with my thumbs helps with that, then my wrists start hurting. I can tie my shoes, but pulling the laces tight enough is another question. A wet bathroom floor requires more thought than driving a car.
I’m an artist, and I ended up making an album about this, along with an interactive browser artwork based partly on my memories of intensive care.
The last song is called Almost Everything. I wanted to include these small frustrations without making each one a tragedy, or pretending they don’t matter.
For transparency, I used ChatGPT and Suno to make the album. The experiences are mine; the lyrics are AI-assisted, and the music and vocals are generated.
If you’re interested, the album is here. Almost Everything is the final track:
https://open.spotify.com/album/4hJqxdw0vwcJVJ6bDOlmsP
Interactive artwork:
https://poka-vy-zdes.urbi.chatgpt.site/
Does that distinction make sense to you too — being able to do something once, versus doing it repeatedly as part of an ordinary day? What’s an everyday object that turned out to be unexpectedly difficult?